INTERNATIONAL PATIENT SUPPORT
Support for HHT patients is available across the globe. Check below for organizations in your home country.
ARGENTINA
Asociacion Argentina de Familias con HHT (AAFHHT)
Facebook Group
Email: comunicacionhht@gmail.com
President: Pablo Mazzeo
CANADA
DENMARK
Website
Email: info@hht.dk
ENGLAND
Coordinator: Diana Lawson
39 Sunny Croft Downley
High Wycombe Buck, ENGLAND HP13 5UQ
Website
Web Monitor: Matt Flectcher
info@telangiectasia.co.uk
FRANCE
Association Maladie de Rendu-Osler (AMRO-HHT-France)
Email: amrohhtfrance.contacts@gmail.com
Website
Facebook Page
View Map
GERMANY
Morbus-Osler-Selbsthilfe
Website
IRELAND
HHT Ireland
Email: info@hhtireland.org
Website
ISRAEL
The HHT Patient Association in Memory of B. Getz
Contact: Ayre Kuperman
Email: Ayreh35@gmail.com
ITALY
Fondazione Italiana HHT
Email: informazioni@hht.it.
Website
JAPAN
Contact: Masahiro Murakami
Email: murakami@hht.jpn.com
Website
SPAIN & PORTUGAL
SWEDEN
Contact: Mildred Lundgren, Secretary
Email: osler@hhtsverige.org
Telephone: +46 70 2128286
Website
YouTube
Twitter
Closed Facebook group: HHT Sverige (för medlemmar)
Open Facebook page: HHT Sverige – öppen sida
URUGUAY
Tel: 099 591 550 | 094 249 791
Email: contacto@hhturuguay.com.uy
Facebook: /hhturuguay
Twitter: /hhturuguay